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| This account (ladydiva) is no longer available. | | 2188 total posts | |
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| | Subject: So sad | Posted: February 1, 2008 @ 3:07 PM | | | So with every thing going on in my life I was looking forward to doing back to work so that I could get my ming off of things. Well since my illness causes cognitive dysfunction and I am showing signs of that My Doc said th at it is a no go what am i supposed to d now? |
| | | | | | Subject: So sad | Posted: February 1, 2008 @ 7:09 PM | | | I'm so sorry to hear that but i can say i know how u feel. i can't work either because of my lupus but social security keeps denying me benefits. so i have to hire a lawyer. i feel worthless at times because i can't take care of myself and my kids the way i used to. i've been close to death so many times that my family treats me like i'm going to die any moment. i don't ask for pitty, just love, support and understanding. it gets hard for women with disabilities especially those of us that are used to being independent. our disability pulls us down to a level where we have to depend of people to have a reasonable quality of life. But it won't be like this always. Even if you have a disease that there's no cure for, it still won't last always because one day we'll learn how to live with our disease and not allow it to get the best of us(well, at least not when we can help it). I know it's easier sad than done but foul yourself into thinking you're alone even at your worst of times. Others suffer too and even though they're not us, it's how we accept our trials that makes us stronger. Strength doesn't come over night, it's only through our pain that we gain it. PEACE OF MIND TO YOU! |
| | | | | | Subject: So sad | Posted: February 2, 2008 @ 1:59 AM | | I understand about the cognitive dysfunction. Mine is very sporadic. I've never had any problem with things I've known forever, but I get confused with recent things. Like I got in the truck to drive to the craft store and I couldn't remember where the heck it was! I had to call my mom and ask. My doc is still letting me work since it just happens sporadically and is usually just forgetting words and things. Or I'll ask my bf the same question several times within one hour.
Has your doctor given you any options or suggestions? Have you looked into permanent disability? I know that isn't what you wanted, but it might give you some piece of mind. Have you thought about doing some volunteer work of some kind? to just get out of the house and focus on something else? Or when things are bad and you don't feel good, maybe something you could help with at home?
Sheera, I've heard that with lupus most people have to get a lawyer to get their disability/SSI. keep me updated if you go that route. I have lupus also.
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| | | | | This account (ladydiva) is no longer available. | | 2188 total posts | |
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| | Subject: So sad | Posted: February 7, 2008 @ 6:53 PM | | | Thanks ladies for the advice, since writing this i have been offered to projects that will keep me busy at least for a little bit. one is writting sceene introductions for and up and comming fashion show and the other is writing a column called truth speak thats a questiona d ansew column |
| | | | | | Subject: So sad | Posted: February 7, 2008 @ 10:50 PM | | That is wonderful that you have something to do! Both sound like very worthwhile projects too. I know you hear this all the time, but try to stay positive! *hugs*
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| | | | | This account (ladydiva) is no longer available. | | 2188 total posts | |
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| | Subject: So sad | Posted: February 8, 2008 @ 5:06 PM | |
Quoting: frecklenose
That is wonderful that you have something to do! Both sound like very worthwhile projects too. I know you hear this all the time, but try to stay positive! *hugs*
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thanks for the virtual hug and i will try and stay positive
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